overcoming challenges
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From Plan A to Plan Z: Living beyond Loeys-Dietz
I am honored to have had the opportunity to speak at TEDxHope College in April 2021. I am excited to share this recording of my TED Talk on life with Loeys-Dietz Syndrome. For more information on Loeys-Dietz Syndrome, please visit… Continue reading
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Songs for the Overwhelmed
Hi! It has been a minute since I made my last post. I decided to focus on school work and health this semester and am planning to get back into blogging over break. That being said, we are all walking… Continue reading
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Loeys-Dietz Awareness Month 2020
June is Loeys-Dietz Awareness Month! We kicked off the month by participating in The Marfan Foundation’s Virtual Walk for Victory. This fundraising event supports patients, families and caregivers through essential research and resources on genetic aortic conditions such as Marfan… Continue reading
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Conversation With Kylie
I met Kylie as a freshman in College, but it wasn’t until our sophomore year that I learned she also has a connective tissue disorder. She has Ehlers-Danlos Type 3 Hypermobility, a condition that affects the tissue in skin and… Continue reading
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I made it to school … now what?
A little less than a month after my lung surgery, I moved nine hours away to begin college. When I chose the school, I knew that moving away was going to be a challenge. Little did I know that I… Continue reading
Beyond This 