chronic illness
-
From Plan A to Plan Z: Living beyond Loeys-Dietz
I am honored to have had the opportunity to speak at TEDxHope College in April 2021. I am excited to share this recording of my TED Talk on life with Loeys-Dietz Syndrome. For more information on Loeys-Dietz Syndrome, please visit… Continue reading
-
A Whole 30 Experience
Every New Year, conversations are filed with New Year’s resolutions. Generally people see the new year as a perfect opportunity to start a habit that will actually be good for their body or mind. It is during this time of… Continue reading
-
Loeys-Dietz Awareness Month 2020
June is Loeys-Dietz Awareness Month! We kicked off the month by participating in The Marfan Foundation’s Virtual Walk for Victory. This fundraising event supports patients, families and caregivers through essential research and resources on genetic aortic conditions such as Marfan… Continue reading
-
Conversation With Kylie
I met Kylie as a freshman in College, but it wasn’t until our sophomore year that I learned she also has a connective tissue disorder. She has Ehlers-Danlos Type 3 Hypermobility, a condition that affects the tissue in skin and… Continue reading
Beyond This 