Beyond This

change in plans

  • From Plan A to Plan Z: Living beyond Loeys-Dietz

    I am honored to have had the opportunity to speak at TEDxHope College in April 2021. I am excited to share this recording of my TED Talk on life with Loeys-Dietz Syndrome. For more information on Loeys-Dietz Syndrome, please visit… Continue reading

    From Plan A to Plan Z: Living beyond Loeys-Dietz

  • Holes are not Vacuums

    This fall was the 10th anniversary of my heart murmur. I should clarify. This fall was the 10th anniversary of a doctor finally noticing a heart murmur. It was actually the 22nd anniversary of the heart murmur as a whole. … Continue reading

  • Songs for the Overwhelmed

    Hi! It has been a minute since I made my last post. I decided to focus on school work and health this semester and am planning to get back into blogging over break. That being said, we are all walking… Continue reading

  • I made it to school … now what?

    A little less than a month after my lung surgery, I moved nine hours away to begin college. When I chose the school, I knew that moving away was going to be a challenge. Little did I know that I… Continue reading

  • The Pinch

    The summer between high school and college was supposed to be a celebration of graduation and an exciting preparation for college. I had three jobs, international travel and lots of other big plans in the works. While it turned out differently than I had planned, it was a huge… Continue reading