Latest Posts

  • A Whole 30 Experience

    Every New Year, conversations are filed with New Year’s resolutions. Generally people see the new year as a perfect opportunity to start a habit that will actually be good for their body or mind. It is during this time of… Continue reading

  • Songs for the Overwhelmed

    Hi! It has been a minute since I made my last post. I decided to focus on school work and health this semester and am planning to get back into blogging over break. That being said, we are all walking… Continue reading

  • Medical Information Folder

    If you are a college student who lives with a chronic illness, you know it is likely that you will need to seek help from a medical professional at some point during the school year. If you have not already… Continue reading

  • Managing Health in College: Making the Plan

    Moving to college, or away from home, is a big change. There is a lot that goes into making that transition comfortable and successful. There are millions of posts on the internet about learning to manage time, learning to navigate… Continue reading

  • Loeys-Dietz Awareness Month 2020

    June is Loeys-Dietz Awareness Month!  We kicked off the month by participating in The Marfan Foundation’s Virtual Walk for Victory. This fundraising event supports patients, families and caregivers through essential research and resources on genetic aortic conditions such as Marfan… Continue reading

  • Conversation With Kylie

    I met Kylie as a freshman in College, but it wasn’t until our sophomore year that I learned she also has a connective tissue disorder. She has Ehlers-Danlos Type 3 Hypermobility, a condition that affects the tissue in skin and… Continue reading

  • Life Gave Us Lemons

    March of 2020 seemed to consist only of news about COVID-19. This is scary and upsetting, and has ripped apart many of our plans. As a college student, I had to leave my campus and begin online classes. As someone… Continue reading

  • What is an allergy really?

    Allergies are confusing. What are they? How do you manage them? How do you explain them to people? How do you figure out what is safe to eat? etc.  Growing up I was vaguely aware that I had allergies. It… Continue reading

  • I made it to school … now what?

    A little less than a month after my lung surgery, I moved nine hours away to begin college. When I chose the school, I knew that moving away was going to be a challenge. Little did I know that I… Continue reading

  • Why Bullet Journal?

    There are a lot of reasons that people decide to become more organized. Whether you are struggling with stress, time management, health, a heavy workload, or balancing more than one responsibility at once, organizing can make life feel just a… Continue reading